Changing Faces, Changing Lives

Patient Support

practical support when you need it

Support that Extends beyond treatment

Living with a cleft or craniofacial condition can bring questions, challenges and practical pressures.

Whether it’s something you or your child were born with, or something that has happened later in life, Craniofacial Australia is here to help.

Our Patient Support program provides practical and financial assistance, trusted information and opportunities to connect with others who understand. Support includes Financial Assistance, Care Packs, our Family Support Coordinator, Coffee & Cranio Family Meetups and our online Resource Hub.

You don’t have to know what you need before you reach out. We’re here to help.

financial assistance

Practical help when it matters most

Facing a cleft or craniofacial diagnosis often means more than medical appointments and hospital stays. It can bring unexpected financial pressures too. To help ease the burden, Craniofacial Australia provides financial assistance for families experiencing hardship. Whether it’s support with travel, accommodation, parking and meal costs for interstate treatment and check ups or help covering essential costs. Our aim is to make sure no family has to choose between getting the right care and keeping up with life expenses. 

Baby with craniosynostosis surrounded by Craniofacial Australia care pack materials, wearing a Cranio Warrior t-shirt

care packs

wrapped with care, sent with you in mind

When the thought of hospital stays, treatment plans and surgery feels overwhelming, even the smallest gestures of care can bring comfort. Our Care Packs are filled with practical items and thoughtful touches. From toiletries, to self care items, to toys for the children (including siblings). We thoughtfully pack and send our Care Packs with you and your family in mind. 

Smiling woman holding young girl in front of a pastel geometric background.

RESOURCE HUB

trusted information, support & guidance

A cleft or craniofacial diagnosis can feel like a lot, especially in the early days. Our Resource Hub has been created to provide trusted, easy-to-understand information for parents, patients, carers and health professionals. It was developed in consultation with families who have lived experience, reflecting the real-life questions, challenges and concerns that many families face throughout their journey. You’ll find condition-specific guides, practical resources, family support information and educational materials designed to help you better understand what lies ahead. 

Smiling woman standing outside Craniofacial Australia clinic with sign and stone wall.

family support coordinator

Your dedicated connection to care

Every family’s craniofacial journey is unique and no one should have to navigate it alone. Our Family Support Coordinator Claire is here to listen, guide and connect families with the help they need, when they need it. Whether it’s a friendly, compassionate ear, helping to access the right support or assisting with Financial Assistance applications. Our Family Support Coordinator makes sure that parents, siblings and loved ones feel supported, understood and never left to carry the burden on their own.

Coffee & Cranio meetup

coffee & cranio family meetups

friendship, support and coffee

Sometimes, the most powerful support comes from simply sitting together and sharing stories. Our Coffee & Cranio Family Meetups give parents and families the chance to connect with others who truly understand the ups and downs. Over a coffee and playspace for the kids, families can exchange experiences, offer encouragement and build meaningful friendships. Our Coffee & Cranio Meetups are run by volunteers, but the coffee is on us. If you’d like to put your hand up to host a Coffee & Cranio Meetup in your local area, we’d love to hear from you!

in their own words

From our community
for our community

Baby with craniosynostosis surrounded by Craniofacial Australia care pack materials, wearing a Cranio Warrior t-shirt

Our greatest strength lies in community.
Together, we create a world where people affected by craniofacial conditions are better connected, empowered and supported.

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