Changing Faces, Changing Lives

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What is a cleft or craniofacial condition?

Cleft and craniofacial conditions are the differences in how the bones or soft tissues of the head, jaw and face develop. They can affect the way a person’s head or face grows and can vary from mild to complex. Every case is unique.

Some conditions are present from birth (congenital). Others happen later in life due to illness, accident, or trauma (acquired).

Cleft and craniofacial conditions can touch many parts of a person’s life at different stages. Depending on the severity, they may affect:

Feeding and nutrition
Speech and hearing
Dental and orthodontic needs
Breathing, vision and other functions like brain development
Emotional and social well being.
& more

With early treatment, ongoing therapy and strong family and community support, many people with cleft or craniofacial conditions go on to live full, meaningful lives.

No matter when or how a craniofacial condition occurs, our focus is on ensuring that every person and family is supported, connected and empowered.

Types of Cleft & Craniofacial Conditions

Cleft and craniofacial conditions cover a wide range of differences that affect the head, jaw and face. Some are more common, like Cleft Lip and Cleft Palate, while others are rare and more complex. We are currently developing a Resource Hub about the types of Cleft and Craniofacial conditions, including downloadable fact-sheets, videos and more. Stay tuned.