Changing Faces, Changing Lives

Nash’s Story

Baby with metopic synostosis sleeping in hospital bed after surgery with toys and colourful quilt.

“Anything is possible with the right people in your corner”

-Michelle, Mum of Cranio-Warrior Nash

This is Nash’s story:

Months after Mum Michelle’s first-born Nash’s birth, months after instinctively knowing the shape of his head wasn’t quite right, Nash was diagnosed with Metopic Craniosynostosis. Not knowing where to turn, Michelle reached out to Craniofacial Australia for support and assistance.

“The team were so helpful and immediately sent us a Care Pack to help with our hospital stay. I was also given information for financial assistance.”

For many people like Michelle, craniofacial treatment can come with a number of unexpected costs – such as scans, specialist appointments and traveling to cities for treatment. Many of these things are not covered by either Medicare or private health insurance. Living in a rural area, Michelle had no choice but to take time off work which, as a sole financial provider, posed an extra burden.

“I completed the financial assistance paperwork and was incredibly relieved when my application was approved. The financials were no longer going to be a big stretch.”

Nash was in theatre for 7 long hours, then ICU for 24 hours. The swelling was confronting, but he recovered well.

Bit by bit, despair transformed to hope. “The surgery was life-changing. His development improved immediately after surgery, and after being advised his speech may be delayed, my little chatterbox is showing me that anything is possible with the right people in your corner. The ongoing emotional support and the financial assistance that Craniofacial Australia gave us will never be forgotten.”

Toddler with metopic synostosis outdoors, held by his mother.

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