Changing Faces, Changing Lives
Stories
every face has a story
these are the voices of our craniofacial community
Our craniofacial community, our “Cranio-Warriors” as we call them, are made up of patients, families, and supporters. Their voices are at the heart of Craniofacial Australia and they demonstrate the power of connection and compassion.
Cranio-Warrior Stories
Click below to filter stories by condition:
Abby was born with Haemangioma and underwent a series of steroid injections from just 3 months of age. Abby says of her experience "It's about being happy about what I have, what I have grown up with and not worrying what others might think”
Archie was born via C-section. The midwife commented on Archie’s large head size and Mum Georgia recalls that this was the first comment in regards to her sons head. The family was over the moon with healthy baby Archie and loved seeing the instant connection between him and his older brother, who was 3 at the time.
My daughter Briana was only 2 days old when she first met Professor David. I was in absolute shock when he walked in, knowing how busy he was. How amazing is it that this man cares so much about this little child that has just been born? When he held her on that first meeting, he said ‘You are the most beautiful little girl and we will do everything for you’.
Cecilia was born with a unilateral cleft lip and palate. She was inspired by the care given to her by medical staff during her treatment and is now a nurse herself. “Everyone is different and it can be hard, but when you grow up it’s not going to matter at all”.
As a young child, Elliot made it very clear what he was going to do in life, which was everything everyone else does “except better”. Despite living with Apert Syndrome, Elliott is experiencing all that life has to offer.
Brave Lucas was born with Hemifacial Microsomia and has undergone 6 surgeries so far. Despite the challenges, Lucas and his family are grateful to be able to access the treatment and support for Lucas to be able to live to the full.
After her routine 20 week ultrasound scan, mum Angel was called in to her GP’s office. “The baby we’d been trying for, for almost three years would be born with a significant (1cm+) cleft lip and palate."
In 2017, Sarah underwent 18-hour long surgery to remove a rare Adenoid Cystic Carcinoma from the inside of her face. She has undergone transformation in more ways than one, using the trials, tribulations, wisdom and self empowerment she has learned along the way.
Selva was born with a rare craniofacial cleft that affects both the bones and soft tissue. He has moved forward in the face of adversity, having had over 15 surgeries. He says “Even if someone said tomorrow I could totally remove all the scars, I probably wouldn’t because I have accepted the way I am”
Zayne came via emergency C-section. He went into fetal distress and we lost his heartbeat. He was rushed in for an X-ray within an hour of being born as they noticed that his head was not the correct shape. He was also resuscitated at birth.
Every story matters - including yours
Every craniofacial journey is unique – filled with challenges, triumphs and everything in between. Every face has a story to tell. By volunteering to tell yours, you’ll not only honour your own experience, but also give hope and encouragement to others walking a similar path. Whether you’re a parent, sibling or supporter, we’d like to hear from you. As a story volunteer, we will make sure that your story is told in a way that suits you.