Changing Faces, Changing Lives
Tag: Sagittal Synostosis
Teddy was born via a planned C-section. On day three, during a routine checkup, the paediatrician came in to examine him. My husband, Alex, jokingly commented, "Thank goodness he doesn’t have a head like mine," as Alex was born with craniosynostosis.
Reuben was born in 2022 weighing a healthy 3,960g. Reuben was delivered via planned C-section at 37 weeks due to unknown cause of acceleration of growth and maternal history of pre-eclapsia and HELLP (Hemolysis, Elevated Liver Enzymes and Low Platelets) Syndrome.
Poppy, now 20 months old (December 2024), had a rough entrance into the world via an emergency C-section due to fetal distress. Because of this, there was a pediatrician present in the OR with us, ready to assess her when she arrived.
Meet Orlando - Diagnosed with Sagittal Craniosynostosis at just 8 weeks old, he underwent skull surgery at 14 weeks, followed by 8 months of helmet therapy.
Milan’s craniosynostosis journey was a long road with many medical professionals, opinions and finally answers and relief! It all started in September of 2019 in the delivery room. Within an hour of his birth one of the midwives approached me and suggested I visit an Osteopath, explain the birth to them and have a good feel of his head.
"Team Huxley" was created by baby Huxley's Uncle Baxter while juggling Year 12. Baxter rounded up twenty of his family and friends to walk or run the Adelaide City-Bay on Sunday 15th September 2024.
Harry was diagnosed with Isolated Sagittal Craniosynostosis at 8 weeks old. We were concerned about his head shape from birth but were initially cleared by all medical practitioners involved in his paediatric care. At our 8-week-old check up with the paediatrician, I expressed my concerns and after examination, we were sent for an X-ray.
From the very beginning, Abigail’s journey has been one of strength, courage and love. What started as a parent’s instinct soon became a life-changing diagnosis, and a path that would require resilience well beyond her tiny years.
After an emergency c-section, Mum Jessica gave birth to baby Harper, who had jaundice, causing her stay in hospital to be prolonged. At Harper’s hospital discharge, the doctors did a thorough examination and noticed her fontanelle was very small and hard to find. Harper was immediately referred for an MRI.
Hamish’s cranio story started the day he was born. No official diagnosis, just a comment from the Paediatrician about his odd head shape. At 3 weeks of age when leaving the hospital, they mentioned the possibility that he may have Craniosynostosis but that she would confirm at his 6 weeks check.