Changing Faces, Changing Lives
Tag: Sagittal Synostosis
Our journey with Craniosynostosis began when James was just two weeks old. We noticed what looked like a lump on the right side of his forehead, flattening on the left side of his head, and one eye that seemed to open wider than the other.
When Billy was born, the midwife made a comment about Billy having quite a large head. At the time we thought nothing of it. Following his birth we had all the checks - the paediatrician, GP appointment, midwife check and everyone said the same thing ‘just keep an eye on his head shape’, as it was quite long.
Our son, Harvey, was diagnosed with sagittal craniosynostosis and underwent cranial vault remodelling surgery at just 13 months of age. Throughout his journey, he has shown remarkable resilience and an unwavering enthusiasm for life.
Our darling little Juniper (youngest of 3 girls) was born with Sagittal craniosynostosis early last year. As soon as she was born, I immediately thought "her head looks unusual" (but still beautiful!). We were told that as she was born via c-section, maybe her head needed some time to "round out".
When Adelaide (Addie) was born, her parents Gabrielle and Dan were suddenly faced with questions no family is prepared for. Would she need major surgery on her skull? What happens next?
Teddy was born via a planned C-section. On day three, during a routine checkup, the paediatrician came in to examine him. My husband, Alex, jokingly commented, "Thank goodness he doesn’t have a head like mine," as Alex was born with craniosynostosis.
Reuben was born in 2022 weighing a healthy 3,960g. Reuben was delivered via planned C-section at 37 weeks due to unknown cause of acceleration of growth and maternal history of pre-eclapsia and HELLP (Hemolysis, Elevated Liver Enzymes and Low Platelets) Syndrome.
Poppy, now 20 months old (December 2024), had a rough entrance into the world via an emergency C-section due to fetal distress. Because of this, there was a pediatrician present in the OR with us, ready to assess her when she arrived.
Meet Orlando - Diagnosed with Sagittal Craniosynostosis at just 8 weeks old, he underwent skull surgery at 14 weeks, followed by 8 months of helmet therapy.
Milan’s craniosynostosis journey was a long road with many medical professionals, opinions and finally answers and relief! It all started in September of 2019 in the delivery room. Within an hour of his birth one of the midwives approached me and suggested I visit an Osteopath, explain the birth to them and have a good feel of his head.