One of the things that we do at Craniofacial Australia is support people from overseas with craniofacial conditions. Zuhair, a dedicated father of 3, searched tirelessly to find the best support and treatment for his first-born daughter Zuhrah. We spoke to Zuhair about how our Patient Support program has played a vital part in accessing the best possible care and treatment for his precious daughter.

We have the pleasure of introducing you to Jason Hooper, otherwise known as JD Hooper. The “D” in JD stands for “Determination” – a fitting description of this champion in every sense of the word.

We are incredibly blessed to have our own beautiful Cranio-Warrior, Daisy. Daisy is 2.5 years old and was born with a rare genetic syndrome; Apert Syndrome. Apert’s is caused by a mutation of the FGFR2 gene and because neither my husband or I have Apert’s, it’s a random mutation. The chances of having a rare gem like Daisy is 1 in 65000.

As a young child, Elliot made it very clear what he was going to do in life, which was everything everyone else does “except better”. Despite living with Apert Syndrome, Elliott is experiencing all that life has to offer.