RESOURCE HUB

Trusted information,
practical support and
real guidance

For families navigating cleft and
craniofacial conditions.

Preparing for Surgery

Simple step by step resources to help families feel prepared and informed.

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Packing for hospital: A checklist for parents
Craniofacial surgery can be a stressful experience for both children and parents. Being prepared can make the hospital stay more comfortable for everyone.
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How each medical appointment supports your child’s care
When a child is diagnosed with a craniofacial condition, families are often given a long list of medical appointments. It is completely normal to feel overwhelmed or unsure about the journey ahead.
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What to expect on the day of your child’s surgery
Being the parent of a child undergoing surgery can feel overwhelming, despite your best efforts to prepare. Knowing what to expect on the day can help you feel more confident and better able to support your child.
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Activities Parents Could Consider Doing on the Day of Surgery
Waiting at the hospital on the day of your child’s craniofacial surgery can be nerve-wracking. Here are some constructive activities that parents may consider while waiting in the hospital for their child’s surgery.

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Understanding Conditions

Learn about craniofacial conditions, diagnoses, treatment and care pathways.

Family Support
Guides

Practical support for surgery, anxiety, hospital stays, feeding, school and wellbeing.

Preparing
for Surgery

Simple step by step resources to help families feel prepared and informed.

Read Stories &
Experiences

Hear from families and individuals who have walked this journey.

You don’t have to navigate this alone.

We are here for you. Reach out for guidance, resources or support.

Our greatest strength lies in community.
Together, we create a world where people affected by craniofacial conditions are better connected, empowered and supported.

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