Changing Faces, Changing Lives
Tag: Metopic Synostosis
A bright and determined little girl who was diagnosed at just 4 months old. Her journey began with endoscopic surgery to remove the fused suture in her skull, followed by 9 months of helmet therapy to gently shape her head as she grew.
Months after Mum Michelle's first-born Nash’s birth, months after instinctively knowing the shape of his head wasn’t quite right, Nash was diagnosed with Metopic Craniosynostosis. Not knowing where to turn, Michelle reached out to Craniofacial Australia for support and assistance.
"From birth, our son has been a warrior." Born with Cystic Fibrosis and Metopic Synostosis, Isaac has been a warrior from birth. Isaac fought for his first breath with the assistance of Neonatal ICU doctors and nurses as well as in the special care nursery to regulate his own blood sugar.
Meet Hunter - Born in May 2022, Hunter was diagnosed with cleft lip and palate and metopic craniosynostosis at birth. He had his lip repaired at 6 months and his palate repaired at 11 months old.
Meet Hazel - Diagnosed with Metopic Craniosynostosis (Trigonocephaly) shortly after birth, her paediatrician recognised the signs right away. At just 6 weeks old, her diagnosis was confirmed with a CT scan, and not long after, Hazel underwent frontal-orbital advancement (FOA) surgery to reshape her skull and support healthy brain growth.
Cranio-Warrior Attila has been through a lot in the first 6 months of his life. Mum Katharina reached out to Craniofacial Australia in a bid to raise awareness. In doing so, she leaves an invaluable footprint for other families.