Changing Faces, Changing Lives
Tag: Sagittal Synostosis
When Cruz was born, mother’s instinct told Bec something wasn’t right. She shares with us her incredible story to find the right answers for her son and receive the treatment he needed for previously undiagnosed craniosynostosis.
Cathy was born in 2020 in Adelaide, South Australia. At birth, it was noted that she had prominent ridging of the sagittal suture, along with dysmorphic features. She was immediately referred to the Craniofacial Unit, and had genetic testing recommended.
Weeks after second son Benji was born, Natalie’s world went into a spin. After being admitted to hospital for an unrelated virus, a paediatric doctor observed Benji’s head shape and referred him to a specialist team at the hospital.
Ava, now 2, was diagnosed at birth with Sagittal Craniosynostosis after nurses noted unusual ridging along her head. She was seen to promptly by the craniofacial unit.
Archie was born via C-section. The midwife commented on Archie’s large head size and Mum Georgia recalls that this was the first comment in regards to her sons head. The family was over the moon with healthy baby Archie and loved seeing the instant connection between him and his older brother, who was 3 at the time.
Zayne came via emergency C-section. He went into fetal distress and we lost his heartbeat. He was rushed in for an X-ray within an hour of being born as they noticed that his head was not the correct shape. He was also resuscitated at birth.