Changing Faces, Changing Lives
Australian craniofacial support organisations
Contents
General craniofacial assistance
Craniofacial Australia
Not-for-profit charitable foundation which aims to achieve the best possible outcomes for those affected by a craniofacial condition.
204 Melbourne St
NORTH ADELAIDE SA 5006
P: (08) 8267 4128
E: info@acmff.org.au
W: www.craniofacial.com.au
www.facebook.com/craniofacialaustralia
Help for specific craniofacial conditions
Craniosynostosis Support Australia
Facebook group
Craniosynostosis support for parents and guardians
Facebook group
CleftPALS
A support network for families of children born with cleft lip and/or palate offering practical assistance and emotional support
CleftPALS NSW
P: (02) 9294 8944 (Feeding & Equipment Support Hotline)
E: info@cleftpalsnsw.org.au
W: www.cleftpalsnsw.org.au
CleftPALS QLD
P: 1300 362 056 (Support Hotline)
E: support@cleftpalsqld.org.au
W: www.cleftpalsqld.org.au
Note: support hotline is available, please leave message if unanswered.
CleftPALS Victoria
P: 0425 784 136 (Feeding & Support Hotline)
E: cleftpalsvic@gmail.com
W: www.cleftpalsvic.com
Note: also supports families in Tasmania & South Australia
CleftPALS WA
P: 0416 232 156 (Support Hotline)
E: membership@cleftpalswa.org.au
W: www.cleftpalswa.org.au
Help for children
Kids Helpline
Free, confidential 24/7 online & phone counselling service for young people aged 5 to 25.
P: 1800 55 1800
W: www.kidshelpline.com.au
Siblings Australia
Support for siblings of those impacted by a chronic health condition or disability.
P: (08) 8253 4936
E: info@siblingsaustralia.org.au
W: www.siblingsaustralia.org.au
Headspace
Free or low-cost mental health service for young people (aged 12-25 yrs)
General psychological assistance
Lifeline
Phone, text or online chat support for people experiencing emotional distress. 24/7 crisis support.
P: 13 11 14
W: www.lifeline.org.au
Beyond Blue
Provider of mental health information and support. Phone / online.
P: 1300 22 4636
W: www.beyondblue.org.au
13YARN
Indigenous crisis support line for mob who are feeling overwhelmed or having difficulty coping. 24/7 support.
P: 13 YARN (13 92 76)
W: www.13yarn.org.au
Relationships Australia
Relationship support service aiming to foster positive and respectful relationships.
General assistance for families
Ronald McDonald House Charities
Supports seriously ill children and their families. Support includes:
- Accommodation near hospitals
- Quiet family rooms within hospitals
- Mobile health clinics for regional communities
- Supportive programs for families
Variety – The Children’s Charity
Helping children who are sick, disadvantaged, or living with a disability. Support includes:
- Grants for specialised medical & mobility equipment
- Programs to support inclusion & community participation
Starlight Children’s Foundation
Supporting hospitalised and seriously ill children. Services:
- Starlight Express Rooms in children’s hospitals
- Wish granting
- Support through play, distraction and positive mental health
Little Dreamers Australia
Supporting young people aged 4 to 25 who provide care a family member affected by disability, chronic or mental illness, addiction or frail age. Vic, NSW & Qld. Support includes:
- Peer programs
- Holiday retreats & respite
- Counselling & mentoring
The Australian Parenting Website
A parenting support website funded by the Australian Government that provides free, reliable, up-to-date and independent information about steps in a parent’s journey. Divided according to the developmental stages of children.
International craniofacial resources
Please note that services and treatments differ between countries. The resources below are included in case additional general information about craniofacial conditions is useful to families.
myFace
A United States based information resource about craniofacial differences.
Headlines Craniofacial Support
UK charity supporting people with craniofacial conditions
Prepared: July 2025. Please advise Craniofacial Australia on (08) 8267 4128 should any information need updating.
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