"Team Huxley" was created by baby Huxley's Uncle Baxter while juggling Year 12. Baxter rounded up twenty of his family and friends to walk or run the Adelaide City-Bay on Sunday 15th September 2024.

Harry was diagnosed with Isolated Sagittal Craniosynostosis at 8 weeks old. We were concerned about his head shape from birth but were initially cleared by all medical practitioners involved in his paediatric care. At our 8-week-old check up with the paediatrician, I expressed my concerns and after examination, we were sent for an X-ray.

From the very beginning, Abigail’s journey has been one of strength, courage and love. What started as a parent’s instinct soon became a life-changing diagnosis, and a path that would require resilience well beyond her tiny years.

After an emergency c-section, Mum Jessica gave birth to baby Harper, who had jaundice, causing her stay in hospital to be prolonged. At Harper’s hospital discharge, the doctors did a thorough examination and noticed her fontanelle was very small and hard to find. Harper was immediately referred for an MRI.

Hamish’s cranio story started the day he was born. No official diagnosis, just a comment from the Paediatrician about his odd head shape. At 3 weeks of age when leaving the hospital, they mentioned the possibility that he may have Craniosynostosis but that she would confirm at his 6 weeks check.

It was a long road for Gordon to finally get here. After many losses we were lucky enough to welcome baby Gordon, little brother to Bernie. A couple of routine ultrasounds raised a red flag around his head and ventricle size, but they were ultimately dismissed as a non-issue.

Gabriel was born via elective c-section on the 3rd of April 2024, at 39 weeks and 3 days. From 20 weeks gestation we were told he was measuring in the 98th percentile for all measurements (which wasn’t a surprise as his brother was the same), he was head down from around the same time and was very hard to get a clear picture of his head on ultrasounds.

Diagnosed with Sagittal Craniosynostosis at just 1 year old, Freddi underwent a cranial vault remodelling at 18 months, supported by an incredible team of haematologists to prepare her for surgery, all without needing a blood transfusion.

Melbourne-based Ella was recently treated for Sagittal Craniosynostosis. Born prematurely at 26 weeks, she spent 4 months in hospital. At 3 months, Ella’s paediatrician referred her to the hospital’s Craniofacial team.

Darcy was diagnosed with Sagittal Craniosynostosis at four months old. This was a scary and unknown time for our family, however our Paediatrician and the whole Cranio team were incredible. They went above and beyond to make us feel at ease and provide enough information on the matter / process going forward, this was especially important to us as we had never heard of the condition.