February 2026

City to Bay fun run in Adelaide 2025

City to Bay – Adelaide

Changing Faces, Changing Lives Sunday 20 September 2026 Adelaide Families Unite! Join the City to Bay on Sunday 20 September! Lace up and run, walk or wheel for Team Craniofacial Australia at one of Adelaide’s biggest and most loved community events. Register now and be part of something bigger than the finish line. Adelaide families […]

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Run Melbourne

Changing Faces, Changing Lives Sunday 19 July 2026 Melbourne Families Unite! Join the Run Melbourne on Sunday 19 July! Lace up and run, walk or wheel for Team Craniofacial Australia at one of Melbourne’s biggest and most loved community events. Register now and be part of something bigger than the finish line. Melbourne families let’s

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Father from Pakistan holding daughter who has Apert syndrome, sitting in the board room at Craniofacial Australia office

Zuhrah’s Story

One of the things that we do at Craniofacial Australia is support people from overseas with craniofacial conditions. Zuhair, a dedicated father of 3, searched tirelessly to find the best support and treatment for his first-born daughter Zuhrah. We spoke to Zuhair about how our Patient Support program has played a vital part in accessing the best possible care and treatment for his precious daughter.

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Young woman with cleft lip and palate smiling, making a peace sign at a craniofacial support event in Australia.

Vallerie’s Story

Meet Vallerie – Born with a bilateral cleft lip, she received her diagnosis during pregnancy and began treatment at just 14 weeks old. Over the years, Vallerie has undergone 7 surgeries, including a hip-to-face bone graft, Lefort 1 Maxilla Advancement, and septorhinoplasty – as well as over a decade of orthodontic care.

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Baby with sagittal synostosis after undergoing helmet therapy, sitting on a sofa.

Teddy’s Story

Teddy was born via a planned C-section. On day three, during a routine checkup, the paediatrician came in to examine him. My husband, Alex, jokingly commented, “Thank goodness he doesn’t have a head like mine,” as Alex was born with craniosynostosis.

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Young woman with cleft lip and palate.

Robby’s Story

I was 6 years old when I first came to Australia from Pakistan where I was born. However, I was born with a birth defect called ‘Cleft Lip Palate’, 1 year later my father came to Australia by boat. He was a refugee and was finding it really hard to find a proper job (as he was uneducated) and to also support us back in Pakistan.

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Baby wearing helmet following surgery for metopic synostosis crawling on grass outdoors.

Rita’s Story

A bright and determined little girl who was diagnosed at just 4 months old. Her journey began with endoscopic surgery to remove the fused suture in her skull, followed by 9 months of helmet therapy to gently shape her head as she grew.

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Baby with sagittal synostosis.

Reuben’s Story

Reuben was born in 2022 weighing a healthy 3,960g. Reuben was delivered via planned C-section at 37 weeks due to unknown cause of acceleration of growth and maternal history of pre-eclapsia and HELLP (Hemolysis, Elevated Liver Enzymes and Low Platelets) Syndrome.

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