Changing Faces, Changing Lives


every face has a story

these are the voices of our craniofacial community

Our craniofacial community, our “Cranio-Warriors” as we call them, are made up of patients, families, and supporters. Their voices are at the heart of Craniofacial Australia and they demonstrate the power of connection and compassion.

Cranio-Warrior Stories

Click below to filter stories by condition:
















Every story matters – including yours

Every craniofacial journey is unique – filled with challenges, triumphs and everything in between. Every face has a story to tell. By volunteering to tell yours, you’ll not only honour your own experience, but also give hope and encouragement to others walking a similar path. Whether you’re a parent, sibling or supporter, we’d like to hear from you. As a story volunteer, we will  make sure that your story is told in a way that suits you.


Share Your Story

Together, we create a world where people affected by craniofacial conditions are represented, empowered and supported.


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Gift in Wills

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