Orlando’s Story
Meet Orlando – Diagnosed with Sagittal Craniosynostosis at just 8 weeks old, he underwent skull surgery at 14 weeks, followed by 8 months of helmet therapy.
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Milan’s Story
Milan’s craniosynostosis journey was a long road with many medical professionals, opinions and finally answers and relief! It all started in September of 2019 in the delivery room. Within an hour of his birth one of the midwives approached me and suggested I visit an Osteopath, explain the birth to them and have a good feel of his head.
Mariam’s Story
Pakistan-born Mariam Saleem was born with Nager Syndrome, a rare and debilitating condition that affects development of the lower face, jaw and mouth. At 6 months, Mariam was treated for Patent Ductus Arteriosus (PDA) – a heart defect caused by problems in the heart’s development.
Marcus’ Story
Marcus is currently undergoing facial reanimation at 9 years old.
He was diagnosed with a brain tumour when he was 20 months old, and while the surgery successfully removed all of the tumour, the messages to his facial nerve stopped working, leaving him with a left facial palsy.
Maeve’s Story
At birth, Maeve was diagnosed with severe Hydrocephalus, a neurological disorder caused by an abnormal build-up of cerebrospinal fluid in the ventricles (cavities) deep within the brain.
Kate’s Story
It wasn’t until Kate was 19 years old that her father told her that he fainted at the sight of her as a baby. It is a significant moment, because it indicates just how far Kate has come. Her story is one of anguish and triumph – a craniofacial journey that will last her whole lifetime.
JD’s Story
We have the pleasure of introducing you to Jason Hooper, otherwise known as JD Hooper. The “D” in JD stands for “Determination” – a fitting description of this champion in every sense of the word.
Jacob’s Story
“I was born at 26 weeks gestation and weighed 590 grams in October 2005 and spent just over 3 months in hospital before coming home.
Due to being born so early, I was in the care of Neonatal Intensive Care Unit, Special Care Baby Unit on tube feeds, oxygen and special care facilities to keep me alive.”
Isaac’s Story
“From birth, our son has been a warrior.” Born with Cystic Fibrosis and Metopic Synostosis, Isaac has been a warrior from birth. Isaac fought for his first breath with the assistance of Neonatal ICU doctors and nurses as well as in the special care nursery to regulate his own blood sugar.
Huxley’s Story
“Team Huxley” was created by baby Huxley’s Uncle Baxter while juggling Year 12. Baxter rounded up twenty of his family and friends to walk or run the Adelaide City-Bay on Sunday 15th September 2024.