It’s natural to feel overwhelmed, but approaching the conversation with empathy and clarity can help your child feel more secure and understand their condition better. The following are some additional tips to consider.
Tips for talking with your child about their craniofacial condition Read More »
Most children diagnosed with craniosynostosis undergo surgery in infancy, or while they are a toddler. Knowing when and how to tell your child about their diagnosis will depend on each child and family. Every child is different.
How and when to talk to your child about Craniosynostosis Read More »
Changing Faces, Changing Lives Download PDF
Winter 2026 Newsletter Read More »
Waiting at the hospital on the day of your child’s craniofacial surgery can be nerve-wracking. Here are some constructive activities that parents may consider while waiting in the hospital for their child’s surgery.
Activities Parents Could Consider Doing on the Day of Surgery Read More »
On Friday night, we walked into a room full of young future surgeons, medical students and supporters who had chosen to spend their evening backing cranio families.
FUSS Charity Cocktail Night 2026 Read More »
When Adelaide (Addie) was born, her parents Gabrielle and Dan were suddenly faced with questions no family is prepared for. Would she need major surgery on her skull? What happens next?
