Changing Faces, Changing Lives Project Title Research Location University of Bristol and Oxford University Hospitals NHS Trust, United Kingdom Research Team Mr Marc SwanMs Nitisha NarayanUK Cleft CollectiveUniversity of Bristol Research Team Project Duration 1 year At a glance Wide cleft palates can be especially difficult to repair and may require multiple surgeries throughout childhood.
Craniofacial surgery can be a stressful experience for both children and parents. Being prepared can make the hospital stay more comfortable for everyone.
Packing for hospital: A checklist for parents Read More »
Starting daycare or school is an exciting step for both children and families. For children with a craniofacial condition, sharing some key information with educators and carers can help them feel confident in supporting your child.
Documenting your child’s craniofacial journey can be deeply meaningful — not only to track progress and milestones, but also to create a space for reflection, sharing, and advocacy.
Capturing memories of your child’s craniofacial journey Read More »
Craniosynostosis is a condition where one or more of the bones in a child’s skull fuse too early, before the brain has fully developed. Surgery is usually recommended to correct the head shape, relieve pressure on the brain (if present), and support normal growth and development.
Craniosynostosis: What to expect after surgery Read More »
When a child is diagnosed with a craniofacial condition, families are often given a long list of medical appointments. It is completely normal to feel overwhelmed or unsure about the journey ahead.
How each medical appointment supports your child’s care Read More »
Every child’s craniofacial journey is different. The appointments, treatments, and surgeries your child may need will depend on their specific diagnosis and how the condition affects them.
Understanding the long-term journey with a craniofacial condition Read More »
Being the parent of a child undergoing surgery can feel overwhelming, despite your best efforts to prepare. Knowing what to expect on the day can help you feel more confident and better able to support your child.
What to expect on the day of your child’s surgery Read More »
Keeping track of your child’s medical and recovery information can make day-to-day care easier and provide a clear picture of progress over time. Recording details like symptoms, pain levels, sleep, and emotions can help you notice patterns, share accurate updates with your healthcare team, and feel more confident in your child’s care.
Tracking your child’s clinical progress Read More »
Parents are their child’s strongest advocates and know them best. At times, you may need to speak up during diagnosis, before surgery, or in the recovery period to ensure your child’s needs are met.
Advocating for your child’s care Read More »
