When a child is diagnosed with a craniofacial condition, siblings often feel confused, worried, jealous, or left out. With thoughtful support, siblings can adapt well—and even grow stronger in empathy, resilience, and connection.
Supporting siblings of a child with a craniofacial condition Read More »
Hospital and specialist appointments are a big part of the craniofacial journey. These visits can sometimes be long, delayed, or overwhelming, especially if you have a baby or young child with you. A little preparation can make the experience easier and help you feel more in control.
Practical tips for medical appointments Read More »
Bullying can happen at any age, in person or online. For children and teenagers with craniofacial conditions, experiences may vary depending on how visible their difference is, what peers know about their surgery or condition, and the social environment at school.
Supporting your Child with Bullying: A Guide for Parents Read More »
Preparing for appointments with your
child’s craniofacial team can feel overwhelming, and it is natural to have many questions. This fact sheet provides a list of questions that other parents have found helpful to ask. They cover a wide range of topics, from diagnosis and surgery, through to recovery, long-term care, and family considerations.
Questions that parents may wish to ask clinicians during appointments Read More »
It’s natural to feel overwhelmed, but approaching the conversation with empathy and clarity can help your child feel more secure and understand their condition better. The following are some additional tips to consider.
Tips for talking with your child about their craniofacial condition Read More »
Most children diagnosed with craniosynostosis undergo surgery in infancy, or while they are a toddler. Knowing when and how to tell your child about their diagnosis will depend on each child and family. Every child is different.
How and when to talk to your child about Craniosynostosis Read More »
Changing Faces, Changing Lives Download PDF
Winter 2026 Newsletter Read More »
Waiting at the hospital on the day of your child’s craniofacial surgery can be nerve-wracking. Here are some constructive activities that parents may consider while waiting in the hospital for their child’s surgery.
Activities Parents Could Consider Doing on the Day of Surgery Read More »
On Friday night, we walked into a room full of young future surgeons, medical students and supporters who had chosen to spend their evening backing cranio families.
FUSS Charity Cocktail Night 2026 Read More »
One of the things that we do at Craniofacial Australia is support people from overseas with craniofacial conditions. Zuhair, a dedicated father of 3, searched tirelessly to find the best support and treatment for his first-born daughter Zuhrah. We spoke to Zuhair about how our Patient Support program has played a vital part in accessing the best possible care and treatment for his precious daughter.
