Parents are their child’s strongest advocates and know them best. At times, you may need to speak up during diagnosis, before surgery, or in the recovery period to ensure your child’s needs are met.
Advocating for your child’s care Read More »
A list of Australia-based organisations and groups that can help provide families and patients with support specific to craniofacial conditions, as well as more general support and assistance.
Australian craniofacial support organisations Read More »
Access to craniofacial services may differ across states. There may also be differences depending on whether you wish to access services through the public or private health care system.
Referral process to access a craniofacial specialist Read More »
Please contact hospitals directly to access the most current and specific information regarding their specific Craniofacial Clinic service. Referrals to craniofacial and cleft clinics are typically made through your child’s primary care physician (GP) or a specialist, such as a paediatrician or a dentist.
Contact details for craniofacial & cleft clinics located in hospitals around Australia Read More »
It’s never easy when people stare or say something about your child. Even if comments are not meant to be hurtful, they can still leave you or your child feeling upset. The encouraging part is that many people respond with compassion and kindness once they understand more.
Responding to stares and negative comments about your child Read More »
Supporting families impacted by a
craniofacial condition—especially during diagnosis and treatment—can make a meaningful difference. Here are some ways that friends and extended family can offer support.
How to support families impacted by a craniofacial condition Read More »
Caring for a child with a craniofacial condition can bring both emotional and practical challenges. During this time, maintaining a strong, supportive partnership is essential—not only for your child’s wellbeing, but for your own.
Supporting each other: A guide for parents of a child with a craniofacial condition Read More »
Talking about your child’s craniofacial condition can be an act of love, advocacy, and education—but you get to decide how and when those conversations happen.
How to talk about Your child’s craniofacial condition with others Read More »
When a child is diagnosed with a craniofacial condition, siblings often feel confused, worried, jealous, or left out. With thoughtful support, siblings can adapt well—and even grow stronger in empathy, resilience, and connection.
Supporting siblings of a child with a craniofacial condition Read More »
Hospital and specialist appointments are a big part of the craniofacial journey. These visits can sometimes be long, delayed, or overwhelming, especially if you have a baby or young child with you. A little preparation can make the experience easier and help you feel more in control.
Practical tips for medical appointments Read More »
