Preparing for appointments with your
child’s craniofacial team can feel overwhelming, and it is natural to have many questions. This fact sheet provides a list of questions that other parents have found helpful to ask. They cover a wide range of topics, from diagnosis and surgery, through to recovery, long-term care, and family considerations.
Questions that parents may wish to ask clinicians during appointments Read More »
It’s natural to feel overwhelmed, but approaching the conversation with empathy and clarity can help your child feel more secure and understand their condition better. The following are some additional tips to consider.
Tips for talking with your child about their craniofacial condition Read More »
Most children diagnosed with craniosynostosis undergo surgery in infancy, or while they are a toddler. Knowing when and how to tell your child about their diagnosis will depend on each child and family. Every child is different.
How and when to talk to your child about Craniosynostosis Read More »
Changing Faces, Changing Lives Download PDF
Winter 2026 Newsletter Read More »
Waiting at the hospital on the day of your child’s craniofacial surgery can be nerve-wracking. Here are some constructive activities that parents may consider while waiting in the hospital for their child’s surgery.
Activities Parents Could Consider Doing on the Day of Surgery Read More »
On Friday night, we walked into a room full of young future surgeons, medical students and supporters who had chosen to spend their evening backing cranio families.
FUSS Charity Cocktail Night 2026 Read More »
One of the things that we do at Craniofacial Australia is support people from overseas with craniofacial conditions. Zuhair, a dedicated father of 3, searched tirelessly to find the best support and treatment for his first-born daughter Zuhrah. We spoke to Zuhair about how our Patient Support program has played a vital part in accessing the best possible care and treatment for his precious daughter.
Meet Vallerie – Born with a bilateral cleft lip, she received her diagnosis during pregnancy and began treatment at just 14 weeks old. Over the years, Vallerie has undergone 7 surgeries, including a hip-to-face bone graft, Lefort 1 Maxilla Advancement, and septorhinoplasty – as well as over a decade of orthodontic care.
Teddy was born via a planned C-section. On day three, during a routine checkup, the paediatrician came in to examine him. My husband, Alex, jokingly commented, “Thank goodness he doesn’t have a head like mine,” as Alex was born with craniosynostosis.
There is a special bond between Professor David David AC and Sofia, one that has existed as long as she can remember. Now in her mid teens, Sofia was only seven months old when she first became a patient.
