Being the parent of a child undergoing surgery can feel overwhelming, despite your best efforts to prepare. Knowing what to expect on the day can help you feel more confident and better able to support your child.
What to expect on the day of your child’s surgery Read More »
Keeping track of your child’s medical and recovery information can make day-to-day care easier and provide a clear picture of progress over time. Recording details like symptoms, pain levels, sleep, and emotions can help you notice patterns, share accurate updates with your healthcare team, and feel more confident in your child’s care.
Tracking your child’s clinical progress Read More »
Parents are their child’s strongest advocates and know them best. At times, you may need to speak up during diagnosis, before surgery, or in the recovery period to ensure your child’s needs are met.
Advocating for your child’s care Read More »
A list of Australia-based organisations and groups that can help provide families and patients with support specific to craniofacial conditions, as well as more general support and assistance.
Australian craniofacial support organisations Read More »
Access to craniofacial services may differ across states. There may also be differences depending on whether you wish to access services through the public or private health care system.
Referral process to access a craniofacial specialist Read More »
Please contact hospitals directly to access the most current and specific information regarding their specific Craniofacial Clinic service. Referrals to craniofacial and cleft clinics are typically made through your child’s primary care physician (GP) or a specialist, such as a paediatrician or a dentist.
Contact details for craniofacial & cleft clinics located in hospitals around Australia Read More »
It’s never easy when people stare or say something about your child. Even if comments are not meant to be hurtful, they can still leave you or your child feeling upset. The encouraging part is that many people respond with compassion and kindness once they understand more.
Responding to stares and negative comments about your child Read More »
Supporting families impacted by a
craniofacial condition—especially during diagnosis and treatment—can make a meaningful difference. Here are some ways that friends and extended family can offer support.
How to support families impacted by a craniofacial condition Read More »
Caring for a child with a craniofacial condition can bring both emotional and practical challenges. During this time, maintaining a strong, supportive partnership is essential—not only for your child’s wellbeing, but for your own.
Supporting each other: A guide for parents of a child with a craniofacial condition Read More »
Talking about your child’s craniofacial condition can be an act of love, advocacy, and education—but you get to decide how and when those conversations happen.
How to talk about Your child’s craniofacial condition with others Read More »
