Lucas is a strong, fun, loving 9-year-old boy. He was born with Hemifacial Microsomia, also called Craniofacial Microsomia, or Goldenhar Syndrome.

He loves all sports especially basketball and AFL, his golden retriever Lexi, being with family and his best friend, older sister Liana. Hemifacial affects everyone differently. Lucas’ right side of his face, skull and ear were underdeveloped at birth which occurs in utero. He was born with a cupped ear.

Mum Sarah explains “When Lucas was born we were in shock, stressed and felt many mixed emotions not knowing what the future held for our little boy. He spent time in the neonatal unit and had many investigations from birth”.

Lucas has bravely faced 5 surgeries so far including plastic reconstructive surgery of his ear twice with more yet to come.

“He is the bravest person we know and has given us all incredible strength watching him brave through hundreds of appointments, assessments, and surgeries. Lucas has moderate hearing loss in his right ear and uses a Baha hearing aid. Recently he got glasses to help support his learning which has seen some challenges but we are working through them. With many different specialists that Lucas sees we have felt so blessed to be able to receive treatment, support and guidance from his team of surgeons and specialists."

THANK YOU SARAH, LUCAS & FAMILY FOR OPENING YOUR HEARTS TO HELP US RAISE AWARENESS