Attilah's Story

Craniosynostosis Saethre-Chotzen Syndrome

Sofia's Story


Pictured: Cruz with his Surgeon Professor David David.

There is a special bond between Professor David David and Sofia, one that has existed as long as she can remember. Now aged 10, Sofia was only seven months old when she first became a patient.


Sofia has Craniofacial Saethre-Chotzen Syndrome, a genetic condition that causes craniosynostosis, the early fusion of the sutures of the skull. Professor David David and his multi-disciplinary team have been there for Sofia for almost her whole life, performing multiple surgeries with their ground-breaking approach and the world-class Craniofacial Unit at the WCH.


“I am sure you remember me from one of your last surgeries before you retired,” Sofia beams in a heartfelt video message to Professor David on his 80th birthday. 

Sofia has already had nine surgeries and will require ongoing treatment and care like many craniofacial patients. It is a journey Sofia and her craniofacial team have been on and continue together.


Patients just like Sofia aren’t just treated once, they need to be supported through their entire lifetime.


Thanks to the specialised craniofacial surgery she received and the on-going treatment and care, Sofia lives a full and happy life. When you meet Sofia, her warmth and radiance shines in abundance and although her craniofacial journey is long, she has resilience and strength that can’t be measured.


“Thank you for doing the work on my skull. You made me a lot better” – Sofia

Pictured: All grown up, Cruz with his Dad gave us a surprise visit at our Craniofacial Australia office in September 2024.

Thank you to Mireira for sharing

Sofia's story.


Please donate today to help others, just like beautiful Sofia. Thank you.

Read more Cranio-Warrior Stories here...
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