Changing Faces, Changing Lives
Patient Support
here for you every step of the way
Support that Extends beyond treatment
At Craniofacial Australia, we know that a cleft or craniofacial diagnosis doesn’t affect just one person. It affects family and friends too. That’s why our Patient Support program is built around care for the cleft and craniofacial community.
We walk alongside families at every stage of their own unique journey, offering practical help, emotional encouragement and a safe space to connect with others who truly understand.
Our Patient Support program consists of Financial Assistance packages, Care Packs, a dedicated Family Support Coordinator and Coffee & Cranio Family Meetups. Soon, we will also be launching a dedicated Resource Hub, an online space where people can access evidence-based, supportive resources.
financial assistance
Practical help when it matters most
Facing a cleft or craniofacial diagnosis often means more than medical appointments and hospital stays. It can bring unexpected financial pressures too. To help ease the burden, Craniofacial Australia provides financial assistance for families experiencing hardship. Whether it’s support with travel, accommodation, parking and meal costs for interstate treatment and check ups or help covering essential costs. Our aim is to make sure no family has to choose between getting the right care and keeping up with life expenses.
care packs
wrapped with care, sent with you in mind
When the thought of hospital stays, treatment plans and surgery feels overwhelming, even the smallest gestures of care can bring comfort. Our Care Packs are filled with practical items and thoughtful touches. From toiletries, to self care items, to toys for the children (including siblings). We thoughtfully pack and send our Care Packs with you and your family in mind.
family support coordinator
Your dedicated connection to care
Every family’s craniofacial journey is unique and no one should have to navigate it alone. Our Family Support Coordinator Lou is here to listen, guide and connect families with the help they need, when they need it. Whether it’s a friendly, compassionate ear, helping to access the right support or assisting with Financial Assistance applications. Our Family Support Coordinator makes sure that parents, siblings and loved ones feel supported, understood and never left to carry the burden on their own.
coffee & cranio family meetups
friendship, support and coffee
Sometimes, the most powerful support comes from simply sitting together and sharing stories. Our Coffee & Cranio Family Meetups give parents and families the chance to connect with others who truly understand the ups and downs. Over a coffee and playspace for the kids, families can exchange experiences, offer encouragement and build meaningful friendships. Our Coffee & Cranio Meetups are run by volunteers, but the coffee is on us. If you’d like to put your hand up to host a Coffee & Cranio Meetup in your local area, we’d love to hear from you!
in their own words
From our community
for our community
