When Cruz was born, mother’s instinct told Bec something wasn’t right. She shares with us her incredible story to find the right answers for her son and receive the treatment he needed for previously undiagnosed craniosynostosis.

Our third child, a beautiful baby boy, Cruz came into our lives in November 2012. But shortly after birth we noticed that the shape of his head was long and narrow and protruded at the front and back. As weeks and months went by the shape of Cruz’s head did not change. We tried for nearly a year to get him assessed by a range of GPs and paediatricians but kept getting shrugged off.

With continual rejection of our concerns I began to think I was just being a paranoid mother and gave up looking for an answer.

However, a few days before his first birthday we consulted a new paediatrician about something unrelated and as soon as we walked into his office He asked who we were seeing for his head, and what was being done about it? I nearly fell off my chair!

A diagnosis of craniosynostosis of the sagittal (central) suture of Cruz’s skull was confirmed that afternoon by X-rays. We were devastated to learn that Cruz would need a major skull reconstruction. Such invasive surgery for a baby – How could this go undiagnosed for so long?

Networking with other families we heard of Professor David David and the Australian Craniofacial Unit in Adelaide.

I immediately got in contact with Prof David and, although we had not yet met him in person, we felt such a sense of relief, sensed his compassion. We had complete faith that we had found the best available care for our baby.

Thank you to Bec for sharing

Cruz's story.

Please donate today to help others, just like handsome Cruz. Thank you.